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An update on Ashton, our ‘angel in disguise’

April 27, 2010
By Amanda (Raitz) Black

As you all may have read in earlier articles about my son, Ashton Black, he still is struggling to win his fight with NKH. For those of you who are hearing about him for the first time, he was diagnosed with non-ketotic hyperglycenemia, a metabolic disorder in which he is unable to digest protein. He also was diagnosed with agenesis of the corpus callosum, hydrocephalus (a shunt was placed to drain fluid from the brain), epilepsy, lissencephaly and cerebellar hypoplasia.

 
 

 

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